Advertisement

How do you deal with the chronic fatigue without losing control of your life?

in by khmurphy92
0

Hello,

I have Raynaud’s, systemic autoimmune disease (I don’t meet all of the criteria to be diagnosed with Lupus, but have many of the symptoms), one moderately elevated anitphospholipid antibody, hypothyroidism, migraines, dry eyes, panic attacks, and polycystic ovarian syndrome. The fatigue, joint, and muscle pain has been almost debilitating lately. I have a rheumatologist, GI doctor, endocrinologist, primary care physician, psychiatrist, and opthamologist. I’m so exhausted I can barely get through every day. I sleep away my Sundays and barely get my home chores done. I’m afraid that my husband will get sick of all of this and leave me once my youngest is out of the house in a few years. Who wants to be with someone who can barely function? Any advice would be appreciated.


About khmurphy92

Conditions: Antiphospholipid antibody syndrome (aPL), Chronic Fatigue, Hashimoto's thyroid disease, Lupus (Systemic lupus erythematosus or SLE)

Doctors seen: DO

Treatment: Prescription medication/shots, Vitamins, herbs, and/or supplements

Children: 3

Age: 45-54

khmurphy92
0

2 Answers

0

Khmurphy...
I hear you girl and get it...we swim in the same health foolishness pool... I too, don't meet the SLE but have had a PE and a long list of medical foolishness..I call my illness "foolishness" it's my coping stragedy.
I'm so oversimplifying, but I believe autoimmune disease only happens to type A women... No one else could do what we do and still keep the trains running..I have a wonderful female dr. Who said to me " you are not the girl you were 5 yrs ago, and you are sicker than a year ago, but I'm in this with you." She was tough, but she loves me and her point...I needed to make priorities...I was hurting my mind, body and my spirit... By not being honest with myself.
The first thing that I did was gut my schedule... And re-think about time...it all has value, but not the same value...
What is my goal for the week? what had to get done? Things can be good enough and not perfect. Store bought cupcakes may not be as good as grandma's recipe, but if you do all that and are too tired to go to the spring concert was it worth it? That was a hard lesson for me to learn...and I still struggle with it everyday...
And I also make everyone aware of what my limits are... I can't swing two big events back to back... I choose, I don't make it to every event my kids are in.....But I do snuggle them and kiss them every night.... Is this what I want... No...but I have to make the best choice for where my body is now.
I don't want to blog-brag.... Because Katie's is way, way more awesome...but I wrote about balance on my Blog pilgrimagegal.com "what makes a good day"....
My Irish heart hurts for yours... I get it...
Hope this helps...if it doesn't I failed....I'm in the same boat as you!

Pilgrimage gal
0

About Me:

Conditions:

Chronic Fatigue, Fibromyalgia, Gluten sensitivity, Inflammatory myopathies

Doctors seen:

MD – primary care, MD – specialist, Acupuncturist

Treatment:

Prescription medication/shots, Gluten free, Other

Children:

2

Age:

35-44
Answered on April 29, 2013

0

Thank you Pilgrimage gal. I truly appreciate the advice. I do need to prioritize so I can enjoy the important things in life. It definitely helps to hear from others who are going through the same thing. I will visit your blog too :-)

khmurphy92
0

About Me:

Conditions:

Antiphospholipid antibody syndrome (aPL), Chronic Fatigue, Hashimoto's thyroid disease, Lupus (Systemic lupus erythematosus or SLE)

Doctors seen:

DO

Treatment:

Prescription medication/shots, Vitamins, herbs, and/or supplements

Children:

3

Age:

45-54
Answered on April 29, 2013

You must login or register to answer a question.