Hashi after Thyroidectomy?

in by hyposherry

(Sorry, long.)
I had a total thyroidectomy because of thyroid cancer. I also have(?)/had(?) Hashimoto’s thyroiditis. I am trying to understand if/how Hashimoto’s can still affect me now that I don’t have a thyroid gland anymore.

I guess the first question is do I still have Hashimoto’s thyroiditis? After all, I no longer have a thyroid gland for my autoimmune system to attack and my understanding is that Hashimoto’s thyroiditis attacks only the thyroid gland. So, it’s not like Hashimoto’s thyroiditis is going to move on to another gland or organ like my adrenal glands or my pancreas now that my thyroid is gone, right? (I know Hashimoto’s encephalopathy can attack the brain, but that’s a different Hashimoto’s).

In addition, thyroiditis is defined as inflammation of the thyroid gland. So is it possible to have thyroiditis without a thyroid gland? I am not trying to split hairs here. I am really trying to understand if I am still subject to Hashimoto’s thyroiditis.

On the other hand, if Hashimoto’s thyroiditis is defined as the presence of antibodies to thyroid antigens, then maybe I still have it. I don’t know. Though those antibody tests were positive at one time, to my knowledge, they have not been run again since my thyroidectomy.

For the sake of furthering the discussion, let’s say I still have it. What can it do to me? It can’t have any effect on my thyroid gland because I have no thyroid gland. So I have an autoimmune disease that affects a gland that I don’t have. Sounds like a non-issue to me. Is that wishful thinking or does that make sense?

I know that people who have Hashi’s are more prone to have other autoimmune diseases as well but, so far, knock wood, there’s no sign of any.

Obviously, I have a boat load of problems due to the fact that I don’t have a thyroid gland to produce the hormones that control practically everything in my body. That’s why I don’t want to borrow trouble. If Hashi’s can no longer affect me, then that is one thing I can take off my plate. But if it can, for example, affect the way my body uses the synthetic T4 and T3 that I take (levothyroxine and liothyronine), then that is something I need to know.

I have not been able to find reliable, science backed information about this. Almost everything I can find about Hashimoto’s thyroiditis is written about its effects in people who still have their thyroid gland. If anyone can point me to some information about any post-thyroidectomy Hashi effects, I would appreciate it.

About hyposherry

Conditions: Not sure right now

Doctors seen: MD – specialist

Treatment: Prescription medication/shots

Children: 2

Age: 55-64

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